I haven’t posted in awhile because well, life. Since today is Epilepsy Awareness Day, it seemed fitting, but to be quite honest every single day is Epilepsy Awareness Day in our house. I am sure there are many people who see me posting these very personal parts of parenting a child with Epilepsy and think “wow, she’s sharing a lot” and I will be the first to tell you that prior to having a kid with multiple disabilities I thought the same of over-sharers.
Then boom, your child has a seizure and you feel alone in this space that you never imagined you would be in. I turned to so many special needs groups to find answers and I did, but it wasn’t until I shared our story did I not feel alone. I have “met” wonderful people through Facebook and Instagram who are in this same Epilepsy Parent club as me, the club none of us wanted to be in but yet here we are. I also found from sharing our story that I could help other parents whose child just had their first seizure and are going through those same emotions of fear, worry, anger and loneliness. I no longer feel alone, my Epilepsy Parent club has grown, though every part of me wishes it hadn’t. I don’t want you in this club, I don’t want you to know what this is like, I don’t want this for your child. But I can promise you this, should you find yourself where I was six years ago, call me, text me, message me, you won’t be alone.
For more information on Epilepsy:
https://www.epilepsy.com/learn/about-epilepsy-basics
Rea of Hope 