Why Now?

I have started and stopped this blog countless times.  I have turned to it to write about good days, bad days and the support of family and friends.  I have turned to it to get all the emotions out.  This week I broke down, like full on needed to be in bed crying all day, broke down. Epilepsy is hard.  It’s hard on the person living with it, it’s hard on the caregivers, it’s just down right freaking hard.  There aren’t many answers and often times it’s a guessing game.  Hardest of all, there is no cure.  Sit back and imagine if your child was diagnosed with an incurable neurological disorder. Here’s the thing you wouldn’t just sit back, you would fight.  You would fight for answers, you would fight for a cure.

So today,  I want to let you in on my fight and in on the world of Epilepsy.  Why today?  Because today, I finally had the guts to hit publish.

I have followed many Special Needs blogs over the years and their stories have helped me to know that I am not alone on this journey.  Thousands of other families are going through similar but different struggles on a daily basis.  If anything I hope this helps another family know they too are not alone.  The struggle is real and the weight and worry we wear (as parents) is heavy, but our kids are the greatest blessings, blanketed in strength, resilience and grace.